Do you have a question? DKMS is classified by the Internal Revenue Service as a nonprofit 501(c)(3) organization and a 509(a)(1) public charity. DKMS is the trading name of DKMS Foundation, a registered charity in England and Wales (1150056) and Scotland (SC046917). Evie’s long, blonde, curly, Rapunzel like hair was also affected. For many, a blood stem cell donation is their best chance of recovery and only 30% of people find a match within their family. In 10% of cases, the stem cells are taken from your bone marrow, under general anaesthetic. DKMS Foundation The only cure for this condition is a blood stem cell transplant. DKMS is a limited company registered in England and Wales (08151279). DKMS is the trading name of DKMS Foundation, a registered charity in England and Wales (1150056) and Scotland (SC046917). This is because the chemotherapy involved in the ‘conditioning’ process would have likely made her infertile, so she had an ovary removed allowing her fertility options when she is older.

We are exempt from federal income tax and all contributions made to our organization are tax-deductible to the extent allowable by law. Evie is now about to start chemotherapy as well as suppressant treatment which causes some nasty side effects such as nausea, increased blood pressure and weight gain. In the majority of cases this is via a process called “Peripheral Blood Stem Cell collection”, which is a little like giving blood. DKMS is the trading name of DKMS Foundation, a registered charity in England and Wales (1150056) and Scotland (SC046917). Registered Address: Ashburnham House, Castle Row, Horticultural Place, London, W4 4JQ. Then some good news came: a blood stem cell donor match had been found, Evie started preparing for the transplant which was scheduled for early September 2020. This information helps us identify you in our database.

After your cheek swab sample has been returned and you have been fully typed, your tissue characteristics will be added anonymously to the DKMS registry for search purposes. W4 4JQ. This means the remainder will need to find an anonymous blood stem cell donor, and that could be you.
Once you receive the kit, you will need to swab the inside of your cheek, following the instructions on the pack, before sending them back to us. DKMS is a limited company registered in England and Wales (08151279). Please enable javascript for this website to work as it was intended. If you don’t have your personal donor number, please update your data by emailing [email protected]. To check your eligibility and request your swab kit, follow the link below. It's important that we can reach you if you're identified as a lifesaving matching donor, so please keep us updated with any changes to your personal details. Preparations for the transplant had already begun and Evie had undergone dental work and ovarian cryopreservation (ovary removal).

We understand there are lots of worries and concerns around coronavirus and would like to reassure you that it is completely safe to request and send in your swabs. By requesting a swab kit, you will help give hope to a family like the Hodgsons and could potentially one day save a life. If you need to update your address, phone number or any other changes to your contact details, please fill in the form below. DKMS is the trading name of DKMS Foundation, a registered charity in England and Wales (1150056) and Scotland (SC046917). London Your previous address corresponds to your current address. Whilst Evie and her family are shielding, they are doing all they can behind closed doors and a keyboard to encourage people to join the blood stem cell register. Please enter your data as it currently is in our database, or in accordance with your last update. Please enter your previous address, if you do not have your donor number to hand. DKMS Chile is committed to safeguarding your personal information. Her response was: “Before it falls out can I donate it to charity?” and so she donated 12 inches of her hair and now sports a cute curly bob. Registered Address: Ashburnham House, Castle Row, Horticultural Place, London, W4 4JQ Registering as a blood stem cell donor is easy, simply check your eligibility and request your home swab kit. Box please provide details or postal address. Please enter your telephone number and e-mail address, so that we can contact you as quickly as possible in the event of a match. Ashburnham House Evie Hodgson, 8, from North Yorkshire was diagnosed with Very Severe Aplastic Anaemia during the coronavirus lock-down. Registered Address: Ashburnham House, Castle Row, Horticultural Place, London, W4 4JQ Since receiving this news Evie’s world has been turned upside down. Our opening hours are 9-5 Monday to Friday but if you leave a message, someone will get back to you as soon as they can. Tragically, the family were later informed that the potential donor had removed their name from the register with weeks to go before her transplant date. If you are identified as a match, you will donate in one of two ways. Please enable javascript for this website to work as it was intended. Whenever you provide personal information, we are legally obliged to use your information in line with all laws concerning the protection of personal information, including the Law 19.628 on the Protection of Private Life. Castle Row Your typing is then stored, in an anonymised form, on the global database. Horticultural Place Die DKMS ist vom Finanzamt als gemeinnützige Organisation anerkannt und von der Gewerbe- und Körperschaftssteuer befreit … Registered Address: Ashburnham House, Castle Row, Horticultural Place, London, W4 4JQ This means you can be identified as a match for anyone in the world. DKMS is a limited company registered in England and Wales (08151279). As a charity, we rely on monetary donations from the public to help cover this cost and greatly appreciate any contribution, no matter how big or small. IBAN:DE64641500200000255556 BIC:SOLADES1TUB. The method of donation is chosen by the patients team based on what is most suitable for them. After your cheek swab sample has been returned and you have been fully typed, your tissue characteristics will be added anonymously to the DKMS registry for search purposes. We have seen the numbers of people joining the blood stem cell register decline dramatically in recent times, and now, more than ever before, we need you to sign up. To register as a blood stem cell donor, you need to be between 17-55, in general good health and not registered with another donor centre. DKMS is a limited company registered in England and Wales (08151279). Select the team you would like to email. Try searching through our list of frequently asked questions. Once we receive your swabs, they are processed in our lab to determine you tissue typing. This diagnosis is devastating, and during the corona virus outbreak, it is even more crucial that we do all we can to offer hope to people with blood cancer and blood disorders.
It's important that we can reach you if you're identified as a lifesaving matching donor, so please keep us updated with any changes to your personal details. She has even performed multiple concerts for the doctors, nurses and hospital staff in the hospital corridors where she is being treated! DKMS is the trading name of DKMS Foundation, a registered charity in England and Wales (1150056) and Scotland (SC046917). Every 20 minutes, someone is diagnosed with blood cancer.

If you'd prefer to speak to someone over the phone, you can give us a call. If you are unable to register as a potential donor, we would be very grateful if you could consider making a contribution towards the cost of a registration. Is your question for our medical, donor recruitment, fundraising or communications team? Quite the entertainer, Evie loves to sing which has proven to be her therapy through this traumatic time. DKMS is the trading name of DKMS Foundation, a registered charity in England and Wales (1150056) and Scotland (SC046917). Registered Address: Ashburnham House, Castle Row, Horticultural Place, London, W4 4JQ. dkms touches hearts and raises over $3.5 million in an unforgettable virtual gala NEW YORK (September 18, 2020) – Last night, DKMS, a world leader in the fight against blood cancer and other blood disorders, brought their annual gala into living rooms nationwide with a special virtual format – and raised over $3.5 million to help grant more blood cancer patient a second chance at life. DKMS is a limited company registered in England and Wales (08151279). DKMS is a limited company registered in England and Wales (08151279). If you have a P.O. Dad Andy, Mum Tina and Evie’s 5-year-old brother William, were all tested to see if they could donate but unfortunately they were not a match. It costs us £40 to register a new donor on the UK stem cell registry. DKMS Chile is committed to safeguarding your personal information.